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Caring at end of life is an innovative research project that has a real interest in people who are supporting loved ones who have come home to die. We are interested in what you have to say as a friend, family member, neighbour, work mate, service provider and community member of a dying loved one.

The specific aims of the proposed project are:

• To further develop our knowledge and understanding of how informal networks support end of life care and to document the impact end of life caring has on these networks,

• To identify if and how people’s capacity to care for someone at end of life changes as a result of being part of an informal caring network,

• To use these insights to inform public health policy by providing information about the links between informal caring and formal care services at end of life ,

• To further the understanding of social networks in terms of social capital and community development theories in the context of end of life caring.

The project is being conducted by Associate Professor Debbie Horsfall from the University of Western Sydney, Associate Professor Rosemary Leonard from CSIRO, Dr. John Rosenberg from Calvary Centre for Palliative Care Research and Gillian Batt from Cancer Council NSW. This project is funded by the Australian Research Council Linkage grants in partnership with Cancer Council NSW.


This study has been approved by the University of Western Sydney Human Research Ethics Committee (approval number H9255).